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Cosas con las que me encuentro

Adam Pearson, Scarlett Johansson and the disfigurement stigma 

Adam Pearson is used to people noticing him. A few weeks ago, he was in a DVD shop near his home in Croydon, south London, and a gaggle of teenage girls starting talking loudly about him and taking photos of his face on their smartphones. “They were saying ‘Oh, look at that man’,” says Pearson. “And all I wanted to do was buy The Hobbit on Blu-Ray.”

Pearson suffers from neurofibromatosis, a condition that affects one in every 2,300 people and which causes non-cancerous tumours to grow on nerve tissue. In his case, the majority of these tumours are on his face although, he adds drily, “I’ve got one on my arse I probably won’t show you”. Throughout his 29 years, he has been bullied, harassed and called everything from Elephant Man to Scarface.

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(Identical twins Neil (left) and Adam Pearson both suffer neurofibromatosis)

Every time he goes out, people stare. On the way to our interview, Pearson was stopped by a couple of passersby as he got on the train. This time, however, it was not as a result of his condition – it was because he has begun to be recognised. Pearson is currently starring alongside Scarlett Johansson in Under the Skin, a critically acclaimed science fiction film directed by Jonathan Glazer about an alien who roams the streets of Glasgow abducting and killing unsuspecting men…”

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Keep reading at The Observer



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“When I first got this role I just cried like a baby because I was like, ‘Wow, next Halloween, I’m gonna open the door and there’s gonna be a little kid dressed as the Falcon.’ That’s the thing that always gets me. I feel like everybody deserves that. I feel like there should be a Latino superhero. 
Scarlett does great representation for all the other girls, but there should be a Wonder Woman movie. I don’t care if they make 20 bucks, if there’s a movie you’re gonna lose money on, make it Wonder Woman. You know what I mean, ’cause little girls deserve that. There’s so many of these little people out here doing awful things for money in the world of being famous. And little girls see that. They should have the opposite spectrum of that to look up to” - Anthony Mackie

When I first got this role I just cried like a baby because I was like, ‘Wow, next Halloween, I’m gonna open the door and there’s gonna be a little kid dressed as the Falcon.’ That’s the thing that always gets me. I feel like everybody deserves that. I feel like there should be a Latino superhero.

Scarlett does great representation for all the other girls, but there should be a Wonder Woman movie. I don’t care if they make 20 bucks, if there’s a movie you’re gonna lose money on, make it Wonder Woman. You know what I mean, ’cause little girls deserve that. There’s so many of these little people out here doing awful things for money in the world of being famous. And little girls see that. They should have the opposite spectrum of that to look up to”Anthony Mackie



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